Ulcerative Colitis Tips


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Help Finding Imuran

the picture Camille sent in

the picture Camille sent in:)

Meet Camille:

Diagnosis of UC didn’t come until I was 40. I took two rounds of Accutane in my 20s, and my system hasn’t been the same since. I believe this is one of the main causes of my UC. I had a bad flare 3 years ago that took away my energy and fitness. I can’t wait to feel strong again! My goal is to be off all meds with the exception of low-dose naltrexone. I have had UC for many years and taken a great variety of meds, but I really believe prevention is the best cure through diet and lifestyle for me.

Some more about her:

I love to ski, which is a bit of a problem when you live in the western suburbs of Chicago. I grew up in Colorado.
I have two boys and a husband who love sports, so we have an active household. Football is currently the focus of the season, and we have the tv on with games a lot. I am focusing on getting back into shape, so I try to find time to workout. Watching my athletic kids and all those athletes on tv is inspirational!

Symptoms:

In remission, thanks to a paleo diet and low dose naltrexone.

Help Finding Imuran

I was in the process of being weaned off imuran/azathioprine, when I went to refill a prescription and found that the supplier hadn’t “supplied”. This was 1 1/2 weeks ago. I was going refilling through Walgreens pharmacy. The pharmacy still has none of this drug. Does anyone know of a pharmacy that does? I live in the western suburbs of Chicago.

I was down to 150 mg/day from 400 a while ago. Has anyone else had experience getting off immune suppressants?

When I was first diagnose, I had a horrible GI doctor. After a colonoscopy, he told me I had ulcerative colitis and to take the meds he had prescribed, which was Asacol. I asked him to tell me more about what I had, and he said “you have ulcerative colitis,” and he walked out of the room. I never went back. After eliminating my symptoms with Asacol in about 4 months, I stopped taking the medication. Three or four years later I started experiencing symptoms again. I told my OB/GYN about my dilema and he recommended a different GI to me. That was the best recommendation ever. I still see him to this day. He put me on Colazal and I cannot remember what else. I did well, but eventually stopped taking that medication.

Then, 3 years ago, my symptoms came back and for months I tried controlling them with diet alone. When I finally went to my GI he was stunned at my condition and said that 95% of my colon was diseased. It had never been more than 25% before.

What I didn’t know was that the longer you let the symptoms go, the further up your colon the disease travels.

I have often thought of how helpful a little info like this would be to other sufferers. There is very little explanatory info out there that isn’t produced by a pharmaceutical company. Anyway, I was on predizone, cort enemas, Azulfadine, then they added a synthetic steroid, which made me blow up like a balloon. They also added imuran.

About this time, I went to visit my sister’s physician in Colorado, who also had UC. He added low dose naltrexone to the mix. Since taking this, I have noticed that I am more resistant to illness and my rotten hayfever that required antihistamines 5 months of the year is almost non-existent. It resets the immune system while you sleep, working with the lymphatic system. For anyone with an autoimmune condition, this is a fabulous solution to a difficult problem. It must be compounded, but it is cheap (which is why many doctors know nothing about it and why no pharmaceutical companies are researching it or promoting it). I pay $30 per month at my local pharmacy for it. If you search on low-dose naltrexone, you will find lots of information.

This physician is now in Oregon at Ventana Wellness, but I still “see” him through phone consults. On a side note, my GI is convinced that the imuran put me in remission, but my Oregon physician and I both KNOW it was the low-dose naltrexone. We’ll let my GI think it was the imuran, though, because it makes him feel better and he is a wonderful man.:)

Medications / Supplements:

Currently on Azulfadine, folic acid, low dose (4.5 mg) naltrexone (LDN)

written by Camille

submitted in the colitis venting area




imuran

6 Responses to Help Finding Imuran

  1. Tim B
    Tim September 25, 2014 at 11:01 am #

    I just got a prescription filled for 50 mg and had no issue. Regardless of cause glad you are doing better.

  2. Adam
    Adam September 25, 2014 at 11:24 am #

    Ditto what Tim said about glad you’re getting relief. Pretty interesting too that there’s been a couple of stories recently on LDN from other UC’ers with positive results. Great to hear.

    FYI too, there’s a webpage for reviews on LDN, I just checked it and didn’t see a review from you there yet, so when you get a minute, please add your thoughts on it to that page. here’s the link: http://www.ihaveuc.com/low-dose-naltrexone-ldn-reviews/

    Best to you, and keep us posted.

  3. Becka K
    Becky September 25, 2014 at 1:12 pm #

    i thought it wasn’t possible to take ldn with Imuran because one suppresses the immune system and one kicks it in. i am on 6mp plus trying to wean off of pred (again), but i would love to try the ldn and get off of all this mess!

  4. Marty Button September 25, 2014 at 1:13 pm #

    I live in Michigan and pick up my prescriptions at Walmart. I am on Asacol and Imuran (I was diagnosed in my 40s too) and I have never had a problem getting my meds. I manage my ulcerative colitis with diet but it is my understanding that meds are not optional. I do not get on and off of them depending on whether or not I am flaring. I asked that specific question before I started taking Imuran and I asked it again at my last appt because I feel great. I will be on them for the rest of my life unless I have my colon removed.
    Hope you find what you need in the med dept. The fitness will follow.

  5. Tim B
    Tim September 25, 2014 at 3:39 pm #

    Fitness has been my escape and helped me at my lowest points so I get that. I stay in the gym even if I have to pop a squat between sets…:-)

  6. Joanne September 26, 2014 at 7:15 am #

    Thank you fso much for your post – I have been prescribed Azathioprine and 40 mg Prednisone ( to taper off in 8 to 10 weeks), along with 2 antibiotics for CDif and CMV ( picked up while hospitalized). Doctors want to add Remicade or Humira (tried Humira before alone -but it failed). Two friends did Remicade infusions for Rhuematoid Arthritus – both got shingles and had to stop.
    I have an appt. at Mayo clinic and will ask about low dose Naltrexone.

    CVS pharmacey in Illinois has been able to get all the meds I have needed for UC for the last 3 years. They also have a specialty pharmacy- via phone that handled the Humira . I am not sure about Naltrexone. I know that it is not used by many docotors because I had a client who was prescribed this and has to get it from a compounding pharmacy in Chicago via the mail.

    Al the best to you and your family as you continue to do what os right for your health.

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