Ulcerative Colitis Tips


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I Found My Cure

Intro:

I was diagnosed in 2009, autumn. Haven’t had a colonoscpy in about 2.5 years, so I guess I’ll have one soon. No symptoms at the moment.

Some more about me:

I like sports, video games, reading, music, movies and traveling. Normal stuff, nothing special.

Symptoms:

None

I Found My Cure

Hi guys, it’s been a while since my last post ( http://www.ihaveuc.com/remission-finally/ ). About 2 years if I’m not wrong. So, here it goes:

I’m terrific. I quit the meds, I stopped seeing my doctor, I stopped doing anything related to my UC. However, I’m working out at the gym, I ride my bike, I can drink (no beer), I eat almost whatever I want (no fruits, except for berries) and feel amazing.

After almost 5 years of colitis, I’m absolutely sure what my problem is/was: stress. All the time I was stressing out about my disease, my diet, my lifestyle, what I eat, what I drink, whether I can go out for more than a few hours without going to the bathroom, going from doctor to doctor, being surrounded by white coats and white walls – it made me sicker than I was. I was decent, but it always came back. So one day I told myself: the hell with it all, I’m gonna have some fun, I’m tired of doctors telling me that I should be happy with the state I’m in and my parents treating me like a sick person. So I moved to another city with some friends for a time. Believe what you want, but two days passed and I was symptom free. I was on the SCD at the time, with some alterations (SCD at home, fast-food when I went out, about 2-3 times/week) and Salofalk enemas. It worked, but I wasn’t feeling 100%. Around 75% I’d say (which is great, compared to what it used to be), but every other 2-3 months it came back. In my previous post, from summer ’12 I wrote that I was at 100%. That lasted a bit longer, but then my UC came back, hah. At that point, I moved out of town with the friends I mentioned and everything was fine.

I moved back home since. I’m aware it will never go away completely, because every now and then (rarely, but it does happen) I have some pain and 2 stools/day instead of one, but I quickly fix that with a short weekend trip outside the town with my girlfriend. So this is what’s doing it for me: traveling. I’m not advising anyone to quit their diets, meds or supplements, I’m just telling you guys what did it for me better than everything else. Leaving town for a few days is my cure for about 1.5 years now and it’s the best so far.

I’ve started going to the gym about 6 months ago and gained some muscle. I was skin and bones thanks to the UC, so this means a lot. I lift the same weights my healthy friends do, I ride my bike for hours at the time, I play soccer, I party on Saturdays and get as much sleep as I can on the rest of the week. That probably helps too, 10+ hrs of sleep every night.

So this is my happy story. I hope you find your secret too!

P.S.
Haven’t done a colonoscopy in a while, am a bit scared, but I think I’ll do it this summer. One can never be too careful. I also have psoriasis. It’s mild, not noticeable, but it’s there and I hate it. And traveling doesn’t help with this bugger, haha. I’m still trying to figure it out.

Hi Adam, I hope you remember me, Marko from Romania :) Hope you’re well too!

written by Marko

submitted in the colitis venting area




11 Responses to I Found My Cure

  1. Adam
    Adam May 11, 2014 at 6:42 am #

    Good job Marko!!!!

    Super super happy for you, and yes of course I(we) remember you! You included some pretty cool pics from you in your hometown last time senor! Hope you didn’t stop using your camera now too buddy:)

    Congrats again for squaring away your UC and figuring out what’s been troubling you and making the necessary changes.

  2. Michele May 11, 2014 at 9:44 am #

    This is very positive! I wish I could figure out how to get mine under control. I was in remission for 7 years while on asacol. Recently had to be switched to delzicol and the flareup started…and still going for 2 months now. I had a back up bottle of asacol left that I started taking and it appears to be better. Unfortunately I can’t get this drug any longer. I’m tempted to see if my doctor will allow me to get it in. Canada. I also have psoriasis…..

  3. Andrea May 11, 2014 at 10:24 am #

    Very happy for you Marko!

    I have to wonder if you have your psoriasis to thank for your success with UC. I read that people with one auto-immune disease will generally not develop another. Immune disease runs rampant in my family. Celiacs (mom, cousins, granddaughter), eczema (several family, including me occasionally), alopecia (several, including me occasionally), MS (sister); and probably more with cousins I’m not aware of. The other thing I’ve noticed about my family is, we DON’T deal well with stress. It always triggers one symptom or another if it isn’t brought under control. It was with major frustration with alopecia that I researched auto immune illnesses, and then became grateful that my stress triggered cosmetic challenges, and didn’t trigger MS like my sister; so I decided to be grateful and learn how to control stress. I learned yoga at a very early age, and that has been my release for the most part.

    I was hit with my first UC June last year. I was under major stress and a deadline that would cost a client millions if I wasn’t able to come through in time to satisfy a grant condition they had to fund a much needed project. I started to develop diarrhea for the first time in my life. No worries; I had perfect health, except for the occasional skin affliction. Nothing I could do, but the day I finished their project I went to the ER passing straight blood. They were going to take my colon, but I said no. Somehow I knew if I got the stress under control again I would be okay.

    Back to yoga and I found Adams website and books to learn about diet. I took it further and learned meditation through the Monroe Institute. Less than a year and I’m symptom free, and medication free. I only take VSL#3 now. I never cuss the occasional blister on my fingers. I take it as a sign to tune the world out and meditate more Sleep is critical. I too get about 10 hours a night, but when I don’t, I’m vulnerable to stress and everything else that follows.

    I’m curious how many other UCers have more than one auto immune illness. I can’t help but wonder if my fast recovery was due to the fact my immune system was busy attacking my hair or my skin, that kept it from focusing on my colon.

    Good luck and stay stress free!
    Andrea

  4. Natalie May 11, 2014 at 3:40 pm #

    Marko –

    Congratuations! How wonderful that you can lead a normal life without very few problems. I would, however, strongly suggest you get a colonoscopy at least every 5 years…..just to be on the safe side. You are a real inspiration to all UC’ers!!

    Andrea –

    I am not too sure just how long I have had UC as I have always had some sort of stomach problems. I had a nasty flare in October of 2011 and that is when I had my first colonoscopy and was diagnosed wtih UC. I couldn’t believe it because no one in my immediate family had it. The only thing that I can think of that caused it would be STRESS. I had mononucleosis when I was 18 years old and think I had been going downhill ever since. I had a thyroidectomy in 2008 and was diagnosed with thyroid cancer. Talk about STRESS! I have also had psoriasis for many years but hardly ever had any outbreaks. It was contained in a tiny patch on the left palm of my hand. Ever since I was diagnosed with UC in 2011, the psoriasi is now in the entire palm of my right hand. Whenever I get an outbreak, I am scratching my palm because it itches so much and, of course, it becomes very sore and flaky. It seems no matter what I put on it, nothing works. I keep saying I am going to go to a dermatologist, but I never go. I guess the reason is because it comes and goes. I don’t have it constantly. So….here’s the thing. Although I get the psoriasis often, my UC is pretty much in remission since I was diagnosed. Since reading this site and taking the advice of Bev, I weaned myself off the meds (Lialda) and take one Ultimate Flora (15 billion live cultures) capsule a day. I also take Astaxanthin daily and occasionally take L-Glutamine. I eat almost anything and everything (except for any corn products) and hardly ever drink alcohol. On occasion, I will drink a glass of wine. So, the thing that bothers me the most is the psoriasis and I do believe that I get the outbreaks whenever I get a little stressed out. I try not to dwell on my UC problems and really believe that helps with keeping me in remission. I am not going to lie and say I NEVER get any UC symptoms but, when I do, they are very mild and diminish within a day. So Andrea, maybe you are right about having more than one auto immune disease!

    • Bev May 12, 2014 at 11:47 am #

      :)

  5. Michele May 12, 2014 at 4:29 am #

    I also have psoriasis and UC…sure seems like a common combination with people with UC. For the psoriasis I also feel that stress makes it worse. I have it on the back of my scalp…and I don’t take anything for it.

  6. Natalie May 12, 2014 at 7:38 am #

    I don’t know if I have psoriasis on the back of my neck, but I frequently feel a lump with soreness at the nape of my neck. I am assuming it is psoriasis also.

  7. Marko May 12, 2014 at 12:16 pm #

    At one point I tried smoking, heard it helps with colitis to some degree. Made the psoriasis worse, so I stopped after a few weeks. I could literally feel the effects of every cigarette on my skin, no kidding. Now my skin in back to normal with some redness and small dry spots on the scalp. Kind of annoying, but I can live with it.

  8. Natalie May 12, 2014 at 10:56 pm #

    I used to be a smoker and NEVER had any skin problems. I do believe my psoriasis is related to my UC. Yes….it is annoying Marko!!

  9. Charmaine May 13, 2014 at 8:37 pm #

    I have had uc for 27 years and I’m 36 now. I used to be a smoker and I was in remission then. Since having children, and becoming a non smoker I’ve gone in and out of remissions in 3 year cylces for the last 11 years. I’ve just recently come out of a three year remission and I forgot how horrible it is!! I’m going to try juicing this time around. I don’t like medications.. I’ve been on salofalk oral, and enemas and asacol. I am pretty sure stress triggered this recurrence. We have a 3 month old son, a year old son, a 5 year old and 11 year old daughters. If that doesn’t lead to some stress I don’t know what does! lol

  10. Becka K
    Becca May 14, 2014 at 9:31 am #

    I, too, have often wondered if inflammation just “travels” and shows up wherever it wants to in the body. During my remission times with uc, I would sometimes get inflammation in the lungs and even in the nervous system. Very weird.

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