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I Have UC and I’m Scared

Tara B f mIntro:

Hello, My name is Tara, I am 29 years old. I was diagnosed with ulcerative colitis in November of 2013. I live In Arizona with my family, and love living here!

Some more about me:

I grew up in England and moved to Arizona when i was 12 years old. I have a 9 year old daughter and have been married for 9 years. I love being a mom. I work part time at a child care and have been doing that for 7 years now. I forget everything and always say “I forgot.” I love to laugh and be around people I love!

Symptoms:

I currently have no blood.(Usually blood is off and on) I have been constipated. It’s strange because everyone with UC says they go all the time, but I wish I could go more sometimes. I get stomach cramps occasionally, sometimes I feel it in my back/left side, not sure if its connected.

Story:

I am an ex-smoker. I quit smoking in June of 2013 and started to see blood in my stools a few months later. I didn’t go to the doctor at first, because it was only when i wiped and I thought it was a hemorrhoid. So when I finally went to see the GI, they recommended doing a colonoscopy and that’s when I found out I have UC. I learned that ex smokers find out they have the disease, and trust me I have wanted to start smoking again so many times, but I think I need to try other ways. (that’s just the easy way out, for now) I was very angry, as I thought I was doing something healthy for my body and now I have something else to worry about.

I was diagnosed and thought it was the end of the world. I was so scared. I literally had chest pain from panicking so much. I was also so angry with my body and the world. I am already a hypochondriac and paranoid person. So of course my first thoughts were “I’m going to die” and “I’m not going to see my daughter grow up and get married” and automatically thought I am going to have to have surgery. Of course, I cant see into the future, but I have hope since I found this website. So many of you have given me ideas of things to try and best of all, HOPE!

My doctor, like mostly everyone here, doesnt agree with diet being an issue. I am wanting to start a new diet to see how it works. Like the SCDiet or gluten free diet. Im not sure, I know no matter what I decide to do, its going to be a tough road. How did you do with changing your diet? Cutting out those foods you love so much? But I know in the end its for the best. I was thinking of trying some probiotics. Has anyone tried any or can recommend a brand?

Medications:

I am taking Delzicol right now 2 capsules 3x a day. That’s all I have tried, but I just went in last week for my second colonoscopy and they said the medication wasn’t working. So he said to continue taking it and prescribed me hydrocortizone suppositories(which I haven’t started yet because prior authorization is needed from the ins. company.)

written by Tara B

submitted in the colitis venting area