Ulcerative Colitis Tips


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I Thought it Was Somach Flu

Meet Mohammed:

I’m 18 years old and diagnosed with Ulcerative Colitis in November of 2009. I enjoy playing hockey, video games and the piano. I also likes to read.

Some more about me:

I enjoy playing hockey and piano. I’m from canada

My Current Colitis Symptoms:

bloody diarrhea, abdominal pain, fatigue, and joint pain

My Colitis – I Thought it was Stomach Flu

In late 2009 after a night of eating a lot of sweets, I started having diarrhea accompanied by pain in my stomach. This continued for three days, and I thought it was another case of the stomach flu. But days turned into weeks and one morning I woke up in having unbearable sharp pain in my stomach. It felt like my intestines was being shredded and torn apart. I went to the walk in clinic with my mom. The doctor asked questions and made an appointment for me with a pediatric doctor. I was 14 at the time. After a few weeks I met with the pediatric doctor and he prescribed me some iron supplements and ordered a blood test to see if I was allergic to gluten. The test came back negative. I then went to my family doctor and ordered stool samples which also came back negative. During this time I was getting frustrated because I didn’t know what was wrong with me and I was still having diarrhea and pain. Every time I ate or drank anything I had to run to the washroom. The pain got worse and I started seeing blood in the toilet. I immediately called and scheduled an appointment with my doctor. On the day of my appointment I was very sick and tired. I was just steps away from the door when I started to feel dizzy and light headed. I started to become deaf and I could no longer hear my mom. And then I just blacked out. Luckily my mom was there to catch me or I would have probably hit my head and died. I woke up in the ER connected to an IV tube . After a colonoscopy I was diagnosed with ULCERATIVE COLITIS!… my life changed forever.

Colitis Medications:

  • prednisone
  • humira
  • sulfasalizine
  • methotrexate
  • remicade
  • ciprofloxacin

written by Mohammed

submitted in the colitis venting area




4 Responses to I Thought it Was Somach Flu

  1. Chris from Massachusetts February 18, 2013 at 7:54 am #

    Hey Mohammed,

    I am sorry to hear you are suffering! This disease sucks major (fill in the blank).

    What worked for me is this:
    I read in Breaking the Vicious Cycle that the body handles protein very well, Fat OK, and Carbohydrates the worst.

    Other than that, Bev (who is a frequent commenter on this site) also has some great ideas (especially her opinion on medication).

    Keep on fighting Mohammed. I know what flares are like: They Suck (fill in word here)!

    Chris

  2. bev February 18, 2013 at 2:59 pm #

    Hi Mohammed!

    I recommend a GOOD probiotic (no kidding) that is recommended for those of us who have UC. Not just yogurt, or a run of the mill probiotic, but one with at least 50 billion strains in it. If you go to the vitamin/supplement store, they should be able to recommend you the right one for UC. You must take it first thing in the morning, with water, on an empty stomach! It matters when you take it. Then, try not to eat for an hour after taking it. If you can’t do that, then get up at 3 or 4 in the morning, take it, and go back to bed! That will work just as good.

    I also take fermented L-glutamine powder, which I mix with a bit of juice for taste. L-glutamine repairs the mucosa of the colon. Again, I take it on an empty stomach, about an hour before lunch.

    Lastly, vitamin D, which you can take 5000 units of, is a good natural anti inflammatory. I take that with lunch because it is absorbed better with fats.

    Like Chris up above said, I have had UC for 15 years, 14 of which I took the meds that the doctors said to take. They not only made me feel sick, but they also all stopped working eventually. That happens to almost all of us. A drug will work for awhile, then it stops working. Therefore, I no longer take medications at all and I never will again. You are new to this and you can help yourself before spending years upon years on the drugs that will stop working, one after another. I didn’t know any better, and just did everything the doctors told me to do. 14 years on drugs that did not help me…I wish I knew then what I know now…

    It took me less than a week on the probiotic to feel better, and then a month after I added the L-glutamine because the only symptom of UC that I still had, was bleeding. The L-glutamine stopped that within two days! Give the probiotics, the L-glutamine and the vitamin D a try…there are no bad side effects at all and they just may work for you, too!!

    Cheers
    Bev
    :)

  3. joanna February 19, 2013 at 6:36 pm #

    how are the medications helping right now? are you still really miserable?

    this disease totally sucks. it is embarrassing and disabling in every way possible. it’s hard to think that we will have it for the rest of our lives. it makes me depressed just thinking about it. I hope for a cure all the time!

  4. Tina March 4, 2016 at 10:41 pm #

    I was diagnosed in December with UC and have had diarrhea since October. In the last 2 weeks it has gotten worse. I can’t leave the house without worrying about not getting to a bathroom in time.
    I am taking Lialda and flagyl plus a probiotic pill.
    For those of you that have this, does the diarrhea stay with you forever or has anyone had any relief from it?

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