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Relief After 30 Years of Ulcerative Colitis – Vitamin D

Who is This 30 Year Colitis Veteran?

I am a 42 year old female; diagnosed at age 12. I’ve had numerous colonoscopies, oral steroids, enema steroids, daily shots of steriods, oral meds (Asacol, Lialda, Mesalazine) and various others. I’ve suffered all the nasty symptoms, missed school, work, important events due to Ulcerative Colitis. Fear of travel due flare ups, anxiety brought on by UC. And FEAR of antibiotics. That never ends well…

More importantly at age 40 I had a new MD appointment.  She ran a full scale panel on me, since the big 40. Tests showed extremely low (negative) readings of Vitamin D & B. She advised me to take vitamins (higher dose, straight off the shelf) with food.
Within a few months I noticed I didn’t have UC symptoms. I continued with my restricted diet, but slowly started reducing and stopped taking UC meds. This was my personal decision. I haven’t had a flare-up at all. I continue with the vitamins and a restricted diet, but I sometimes cheat with no issues.

vitamin d treating colitis

After 30 years of UC I have finally found some relief. I can’t believe this seemed to help but it did for me and I wish someone would have told me this long ago.

Colitis Symptoms:

I currently have no symptoms at all. 2 years free of symptoms!

My Colitis Story:

As you may know, at first everything you eat bothers you. So I determined just not to eat – it was easier that way (I was 12). I would drink liquids but that was it. Of course it freaked my parents out tremendously. I dropped weight, but hey I didn’t have the bloat and constant running to the bathroom.

The doctor determined that I should use the enema steroids along with daily injections of steroids to bring the UC under control quickly. My dad had given his mother diabetes injections so he was the lucky winner to give me the shots. The liquid was so thick it would burn and slowly make its way into my system. Eventually I would have tears rolling down my face since it burned; so my doctor upped my dosage to try and stabilize it faster. In hindsight I don’t think they really had a firm grip on UC at least not for a 12 year old. Ultimately all the steroids and meds did what they were suppose to do (make my face swell) and gave me some limited relief.

It wasn’t very much fun and I felt like somehow it was never going to end. I was right! It never ends but as an adult you grow to see a different view that there are far worse things that could happen. And managing my little condition was just something I would have to do. Me and my shawdow UC – always with me.

Colitis Medications:

As stated above, I think the Vitamin D has help tremendously.

written by “40 Plus and Wiser”

submitted in the colitis venting area




vitamin d

20 Responses to Relief After 30 Years of Ulcerative Colitis – Vitamin D

  1. Barb December 7, 2012 at 1:10 pm #

    How are your joints feeling?

    • 40 Plus and Wiser December 12, 2012 at 7:56 pm #

      Barb:

      I have had no joint issues since going into remission with Vitamin D. I’m keeping my fingers crossed!

      • Ann October 7, 2014 at 7:02 am #

        Hi 40 Plus and Wiser, Are you still in remission taking the Vitamin D? Is it D3? I have been in remission for over a year but seem to be flaring for the past 7 days. I want to nip this in the bud fast! I am on the SCD, multi-vit, Asacol 3xs a day, Canasa suppositories when bleeding, Omega 3, 1 T coconut oil, on and off probiotics since they are so expensive…I refuse to go on Remicade but am afraid that’s is where I might be heading one day…I hate my quality of life when I am in a bad flare…I am very active during the year, all four seasons but the sun is most prevalent in the summer. I hope you can respond to my question about your remission. I think I will give Vitamin D a chance, I have nothing to lose and everything to gain. Take Care fellow uc-er’s.

        • Adam October 7, 2014 at 10:13 pm #

          Hi.
          First you need to do blood test for vittamin D level and see how much you got. Accourding to the result then your doctor can decide how strong the doss you need. But in general speaking most of the people got UC the vit D level is very low in thier blood. Mine was 19. And for normal level it should not go under 30. And should not exceed 80. Am taking vit D3 10000 IU a day three months course. I have done a lot of search and found that vit D has very strong link to our UC. But we have to be very patint with treatment. Because it take six months to put the vit D level up. Good luck to evey one

          • Ann October 8, 2014 at 6:29 am #

            Hi Adam, Thank you for your reply since I was not taking too high of a dose into consideration. I am due for my annual colonoscopy but I don’t want to go unless I am in remission. I don’t want the docs to put me on Remicade because I am having some bleeding which I think will calm down because it usually does. I sometimes need Prednisone to stop the bleeding and sometimes not. Hopefully this is one of those times I don’t need the Prednisone. I am still striving to not be on any meds at all…not there yet and a little frustrated about the whole thing. UC is a slippery slope!

  2. joanna December 7, 2012 at 1:48 pm #

    how much vit d do you take every day and in what form?

    what are your levels like now?

    a few months ago when it was warm, my levels were 88 and now they’ve dropped to 40. i never go for walks or sunbathe since it’s freezing and my current supps aren’t helping anymore.

  3. bev December 7, 2012 at 3:17 pm #

    This is truly fantastic…I thought probiotics got me into remission, but now I think that vitamin D perhaps has also has had alot to do with it. Out of the blue, a few months ago, a substitute doctor for my own decided to rest my D levels. Well, wouldn’t you know, I was very low in vitamin D! I was totally unaware. He advised I take 4000 units, with fat, and onw mobth later, my levels were right up there!

    I have not given this any more thought, because I was already in total remission, and off all meds, due, I thought, to simply the probioitics. However, when I started the probiotics, I also started taking vitamin D, but only 1000 units, and not necessarily with food or fats. It was evidently not enough D, either, as my levels at that impromptu blood test were very low, When I upped the vitamin D dose to 4000 and took it along with fats for a month, my levels really went up…and I also never seem to have any UC symtoms, no matter how small, at all any more.

    Could vitamin D be the answer??? It is a anti inflammatory, after all! It is very inexpensive, as well…

    BTW, as far as cheating goes…I eat whatever I want! I have been doing that since my symptoms disappeared…it’s so great to live ‘normally’ again! I never really did drink alcohol, maybe a cooler twice a year, but I bet I could even do that if I wanted to?!

    Cheers, and thank you SO much for your story. Marvelous!!

  4. Lisa OH
    Lisa Kapp December 8, 2012 at 7:51 am #

    That is awesome! So happy for you, you are a UC butt kicker! Go vitamin D:)
    Lisa

  5. 40 Plus and Wiser December 12, 2012 at 8:22 pm #

    Joanna:
    My MD recommended 10,000 IU of Vitamin D-3 twice per day. Then after six months she reduced me to once a day.
    I’m scheduled for a check up again after the first of the year. I suspect she will reduce the units again pending the outcome of my blood work.

    I bought my supply of gel caps at Costco; nothing fancy, just a bottle of 400 for under $10.00.

    • joanna December 13, 2012 at 8:09 am #

      ok thanks. i will try this. i usually do 10,000 iu a day, but might as well double it.

  6. Veness December 15, 2012 at 11:50 am #

    I am so glad to hear this! I have been diagnosed for 10 years. I am 34. I recently had a bad flare that landed me in the hopital for a few days. About a month ago I found out my D level was less than 18. My Dr. has me on 50,000 IU a week for 12 weeks. Praying Vitamin D is the answer!

  7. Randy December 16, 2012 at 8:02 am #

    Hi, it is great to hear that your UC has stayed in remission for so long. I just wanted to throw in that, for me, vitamin D3 supplementation apparently didn’t prevent the onset of UC. About half a year prior to my UC onset I began taking 5000 micrograms of vitamin D3 daily and have continued to do that.

    • Gus January 21, 2013 at 2:42 pm #

      Ulcerative colitis is such a wide open (I bet its probably ten or twenty different conditions) and misunderstood disease that it’s no wonder there are so many triggers and cures….. so it’s no wonder vitamin D might not work for you, especially if you didn’t have ulcerative colitis and were already taking vitamin D before it your symptoms appeared…… Personally, i really like that someone out there has a simple solution to their condition because that gives me hope that for anyone vitamin D doesn’t work for, there may be a simple, non-invasive, no side effect, solution for them as well, cos looking around, doctors seem to just prescibe a truckload of meds with terrible side effects that basically don’t work and that is just not satisfactory in my books……

  8. prince choudhary August 1, 2013 at 7:36 am #

    do u take vitamind-3with water or any food or fat plzz tel me bev

    • bev August 1, 2013 at 9:23 am #

      Yes, I take 3000 units of vitamin D (along with one 4mg capsule of astaxanthin) per day, with fats, because it is better absorbed with fats. Usually with lunch.

  9. Jason H November 27, 2013 at 8:09 pm #

    I am seeing Vitamin D have a very positive effect on my UC. By abstaining from artificial sweeteners, NSAIDs and supplementing with Vitamin D, I have been able to remain in remission.

  10. bev November 27, 2013 at 10:50 pm #

    That’s great Jason! I am in remission as well, and I take vitamin D every day, along with a probiotic and L-glutamine.

  11. Nick February 11, 2014 at 12:44 pm #

    My husband has uc it’s been one of the hardest things I’ve ever seen someone struggle with also it’s been hard on our marriage especially when he is on steroids with seems at the moment he’s more on them then off,I just came across this website on the benefits of taking vitamin d when you have uc,he hasn’t been tested for vitamin d levels so could he just start them straight away without being tested,I myself have been taking vitamin d for the last year or more my levels were low and I was tried and sick lots getting one sickness after the other since taking vitamin d I can’t remember the last time I was really sick.I really really worry about my husband we are a young couple with two young children I would really love him to start having a better quality of life which means we all have a better quality of life.so do you think we should give the vitamin d a go?

    • Khalid June 21, 2014 at 1:25 pm #

      But before your husband start taking vitamin D let him make a blood test and see what is the level of vitamin D. Then doctor can decide how many doze he needs.

  12. Khalid June 21, 2014 at 1:18 pm #

    Am 37 years old and have the UC for two years now. I live in middle east where is the sun most of the years is shining and i did not know that 20 mints a day exposing my body to the sun could save me of UC where i get my vitamin D from. So the sun is the main source of vitamin D. Goodluck to every one

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