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Remicade Question (I just had my 4th Infusion)

Intro:

I was diagnosed with severe UC in June 2011. Remicade seems to be the only thing that really works. Not in remission yet, but hopefully close to it!

My Current Question:

I’ve been getting Remicade infusions since July 2011. I was going to the bathroom 5-6 times per day after my first infusion. After my second infusion, I was going to the bathroom 4 times per day. It was like clockwork. I even knew around what times I’d be going. Then I had my third infusion & things got strange. It became totally variable when I’d have to go to the bathroom. I’d go anywhere between 0-6 times per day (the average was 3). Is that normal? Does your body adjust differently? I thought that after each infusion, I’d gradually go down one time per day of having to go to the bathroom.

I just had my fourth infusion on Tuesday. I know it usually takes about a good week for my body to adjust to the medicine, but should I still expect the same thing to continue?

Current Medication Stuff About Me:

Current medications:

Remicade
Apriso
Nexium
Multi-Vitamin
Immune Support Vitamin
Vitamin B-12 (for hair loss)

Submitted by Lara in the Colitis Venting Area

 




Remicade

5 Responses to Remicade Question (I just had my 4th Infusion)

  1. Adam
    Adam November 3, 2011 at 1:05 pm #

    Hey Lara,
    What’s happening!
    I just saw your posting, and wanted to let you know that I was thinking of you!.

    It’s pretty crazy how everyone’s got unique experiences with Remicade. One thing I’d highly recommend to get some quick answers from ALOT of different people who have used Remicade and who have Ulcerative colitis is to go check out the:

    35 Patient REMICADE SURVEY RESULTS:

    If you go there and look at questions 8, 9, and 10, I think you’ll get some great and valuable feedback from other UC’ers experiences with the medciation.

    Are you seeing the bowel movements get any better today at all?

    Thinking of you,
    Adam

  2. Katherine November 3, 2011 at 1:17 pm #

    Hi,

    Not to be negative, but remicade does get less effective the more you have it, you basically reach a plateau and it levels out

    That’s what my GI told me and what I found from experience,

    Katherine

  3. Lara
    Lara November 3, 2011 at 3:27 pm #

    Adam: Oh yes! My bowel movements became solid after the first infusion. Still are. I guess we’re just trying to work on the frequency part.

    Katherine: Thanks for letting me know. Sounds like a blast, lol. I see my GI doctor after Thanksgiving. I’ll just have to ask him about it then.

    • Adam
      Adam November 3, 2011 at 3:42 pm #

      Hey Lara, got it, that’s pretty awesome that you’re having hard ones. I guess I’ve always thought that when the bowel movements are hard, the colon is definitely doing quite a few things right. From my experience, it sometimes take a bit longer for me to go from feeling pretty good with multiple daily BM’s, to feeling really good and one hard one. So hang in there, sounds pretty promising, and that’s awesome!

  4. Dom November 3, 2011 at 3:45 pm #

    Hi Lara and Katherine,
    As I’ve said on another post, Infliximab saved me. Got my 8th infusion 3 weeks ago and so far so good. Katherine, you mentioned that it levels out after a time, how long did it last for you, and did you have a flare again?

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